For Families

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, PLEASE READ THIS FIRST. 

 It is also very important to never lose sight of the amazing strengths and abilities all of the people with alstrom posess.  They inspire us all every day! 

A GENERAL DESCRIPTION OF SOME OF THE FEATURES OF ALSTROM SYNDROME.  It is important to remember that not all individuals with Alstrom experience all of these symptoms.  Alstrom Syndrome is extremely variable!

 

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For additional information see Clinical Features