For Families

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, PLEASE READ THIS FIRST. 

 It is also very important to never lose sight of the amazing strengths and abilities all of the people with alstrom posess.  They inspire us all every day! 

A GENERAL DESCRIPTION OF SOME OF THE FEATURES OF ALSTROM SYNDROME.  It is important to remember that not all individuals with Alstrom experience all of these symptoms.  Alstrom Syndrome is extremely variable!

JOIN THE ASI BLOG!  You will have to register only once.  CLICK HERE

DON'T MISS THE NEW ASI FORUM  WHERE ALL TOPICS ALSTROM ARE DISCUSSED WITH FAMILIES, PHYSICIANS, AND RESEARCHERS!!
To sign up, please fill out the request form using the following LINK.

Subscribe to Alstrom Syndrome International Email: Visit this group

For additional information see Clinical Features

RESEARCH PARTICIPATION OPPORTUNITY FOR INDIVIDUALS WITH ALSTROM SYNDROME
Click here for  more information