Alström Syndrome International 
Board of Directors

2011-2012

Mission

To provide support, information, and coordination world-wide to families
and professionals in order to treat and cure Alström Syndrome

• Phyllis Aschenbrenner (USA), Chair
• Sebastian Beck, MD (Germany)
• Nevin Bengur (USA)
• Gary Bittiger (USA)
• Catherine Carey, MD (UK)
• Selma Duzleni-Gepdireman, MD, PhD (Turkey) 
• Brittany Foor (USA)
• Clair Francomano, MD (USA)
• Sandra M. Hubbard-LeBlanc (Canada)
• Pamela Jackson (USA)
• Tony Jackson (USA) 
• Pietro Maffei, MD, PhD (Italy)
• Jan D. Marshall (USA), Chair Scientific Advisory Board
• R. Koksal Ozgul, PhD  (Turkey)
• Mary Smart (USA)

Robert P. Marshall (USA), Executive Director
Shannon Caldwell (USA) A Team Leader and Ambassador

Gina Denbow (Canada) - Family Outreach Coordinator
Debbie Hughes (New Zealand) - Family Outreach Coordinator
Carrol Lyon (UK) - Family Outreach Coordinator