Welcome to Alström Syndrome International

Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. Since then, we have identified more than 750 individuals with Alström Syndrome in fifty one different countries.  Alström Syndrome can affect people of all nationalities, ethnic groups, and races.

Alström Syndrome International is a 501 (C)2 Registered Charity.

ALSTROM SYNDROME INTERNATIONAL
14 WHITNEY FARM ROAD
MOUNT DESERT, MAINE 04660 USA

Phone: (0)1-207-244-7043
Fax: (0)1-207-244-7678
Email: ASIRobin@hotmail.com

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, PLEASE READ THIS PAGE FIRST.

PLEASE NOTE:
The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.

JOIN THE Alstrom Syndrome Discussion List on Google Groups

Information in other languages

• Italian
• German
• Spanish
• Japanese
• Dutch
• Portuguese
• Swedish   The Swedish Information Center for Rare Diseases
• Turkish
• Georgian
• Romanian
  Polish

BIOGRAPHY OF CARL-HENRY ALSTROM

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