Love is Blind: Marty Klinkenberg, The Telegraph-Journal

Here’s a link to a magnificent piece written on Alström Syndrome, ASI, and Katelyn Denbow and family, published to Canada’s Telegraph-Journal. An exceptional article, both touching and educational.

Kolby Zanier and the HeartWare Pump

Here’s the amazing story of Kolby Zanier, an Alström Syndrome patient with an amazing new technology that stands to change the lives of people suffering from congenital heart complications. It’s great to be alive at a time when such technology is changing lives for the better, and stands to help so many more into the future! Read […]