There are regional Alström organizations in Canada:

ALSTRÖM SYNDROME CANADA

RR#2 Box 204
Finch, Ontario
Canada K0C 1K0
Email: randydouglas@sympatico.ca

ALSTRÖM SYNDROME INTERNATIONAL CANADA
RR#3, Box 47, Tusket
Yarmouth Co. Nova Scotia
Canada B0W 3M0
Email: ASISandra@eastlink.ca