Skiing Facts – by Lauren (age 10)

Skiing Facts By Lauren  – Age 10 Do you want to go skiing?  First you need skis, boots, and a helmet.  If you can’t see or can’t hear, you need extra equipment.  You might need an FM system or an extra helper, or a bamboo pole.  Your guide helps you go down the slope to […]

Gabe Iacovino – persistence!

I would like to share a story about the success and determination of a child with Alstrom Syndrome in the hopes that not only that it may not only inspire but assist others whose lives have been affected by this disease. Aside from the physical manifestations of Alstrom’s and the severe medical complications that arise […]

2013 ASI Family Conference and Scientific Symposium

7th ALSTROM SYNDROME INTERNATIONAL FAMILY CONFERENCE AND SCIENTIFIC SYMPOSIUM The 7th Alstrom Syndrome International Family Conference and Scientific Symposium will be held in at the Radisson in Plymouth, Massachusetts, USA.   Families and professionals from around the world will attend the Conference. Medical professionals and scientists will hold Symposia on Thursday, May 9th and Saturday May11th, […]

Amanda inducted into National Honor Society

April, 2011.  Amanda Fee has been recently inducted into the National Honor Society!  Here is a photo of Amanda accepting her award at her High School in Minnesota.  Congratulations Amanda!!