Associazione Alström Syndrome Italia – Third Family Meeting
Associazione Alstrom Syndrome Italia will hold its third family meeting October 5, 2013 at the Hotel Terme Millepini – Montegrotto Terme, Padova PROGRAM Convenzione Eolo eventi – 5 ottobre 2013 Millepini
ASI Family Conference
2013 AGENDA – INCLUSIVE -12-01-2012 Dear Families and Friends, The 7th International Family Conference is just “around the corner” (May 9-13)! Many of you have made your reservations at the Plymouth Radisson; quite a few have submitted their Registration Forms; a few have already paid their Registration Fees. BUT, we are still waiting to hear […]
BJ receives successful heart-lung transplant !!
Please check out this wonderful news about BJ receiving her heart-lung transplant! She asked that we share her story with the Alstrom Family and is looking forward to meeting you all in May! http://www.wcjb.com/local-news-health/2012/10/local-woman-rare-genetic-disorder-continues-inspire
Two runners for ASI in the New York City Marathon
Greetings! I am very excited to report to you all that we have TWO runners in the upcoming New York City Marathon (Sunday November 4) in support of Alstrom Syndrome International . Please check out and support their Giving pages on CrowdRise. Bill Holobowski http://www.crowdrise.com/billholobowski Qraig DeGroot http://www.crowdrise.com/qraigdegroot Many thanks to both runners for undertaking this […]
