Alstrom Update – Please Donate

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The mission of ASI is: To provide support, information, and coordination world-wide to families and professionals to treat and cure Alström Syndrome. Update from Alstrom Syndrome International

Research Findings Provide Insights – The Alstrom Syndrome Journey

Research Findings

In the course of their effort to advance trial participation and to ultimately gain approval for the anti-hyperphagia drug Setmelanotide, Rhythm Pharmaceutical, with the cooperation of Alstrom Syndrome International, generated the following report to aid those interested in or needing to understand the lived experience of those impacted by Alstrom Syndrome. Ultimately, the FDA did […]

FDA post EL-PFDD event survey

Hello everyone! The FDA post EL-PFDD event survey is ready to go. This survey should be completed by people who did not attend in person or virtually or those who did attend but did not fill out the survey during the meeting on September 22. The survey should be filled out by only those who […]