International Rare Disease Day 2014

February 28, 2014

Today is International Rare Disease Day! Spread the word, raise awareness for Alström Syndrome.

Wishing you all a productive day for our cause!!

Rare Disease Day 2014

News from the Schiafone Family

October 1, 2010

“We ourselves feel that what we are doing is just a drop in the ocean. But the ocean would be less because of that missing drop. “ ~ Mother Theresa

October 1, 2010