Secure online registration for the 8th Family Conference and Scientific Symposium in Plymouth MA (May 12 – 16, 2016) is now OPEN!

Register you and your family today!

At last, the Alstrom Research Connect and Family Exchange has launched!  Find out more about this patient-centered registry that will enable researchers as well as other families to learn more about the syndrome as they work towards a cure.  You control your information!  YOU can drive research forward!  Sign up today!!

To enter the ARC Registry, click HERE
For additional information about ARC, click HERE