News & Articles
Frequently Asked Questions about the ARC Registry
PLEASE PARTICIPATE IN THIS IMPORTANT PROJECT! LINK TO ARC SURVEY Alstrom Research Connect FAQs 1. How do I participate if I have low vision and use
Online Registration for 2016 Conference is OPEN!
Secure online registration for the 8th Family Conference and Scientific Symposium in Plymouth MA (May 12 – 16, 2016) is now OPEN! Register you and
Alstrom Research Connect launches today!!
At last, the Alstrom Research Connect and Family Exchange has launched! Find out more about this patient-centered registry that will enable researchers as well as other
YOU are the heroes who will make this happen!!
Dear Alström Family, Many thanks for the compliments following our posts about the Precision Medicine Initiative. A few members need to understand that the work
Alstrom Syndrome International ON THE MOVE!
Barack Obama, President of the United States, has announced a new initiative called the Precision Medicine Initiative. What he was really talking about was making
Vote for Alstrom Angels to win a $10,000 donation for research!
CitiBank in Lubbock Texas will donate $10,000 to the winning charity. LET’S MAKE SURE THAT ALSTROM ANGELS IS THAT CHARITY! Keep those votes coming Alstrom
Palmer competes in OFSSA
Congratulations to Palmer for successfully competing in the Ontario provincial cross country championships (OFSSA), Nov 2014 in Waterloo, Ontario, Canada. Palmer ran in the Para
ASI’s Sandra Hubbard-LeBlanc receives the Katharine Pearson award ‘shining example’ of caregiver
Sandra Hubbard-LeBlanc, mother of Cheryl, member of Alström Syndrome International Board, and chair of ASI’s Canadian branch, received the Katharine Pearson Shining Example Award for promoting
