News & Articles
Palmer competes in OFSSA
Congratulations to Palmer for successfully competing in the Ontario provincial cross country championships (OFSSA), Nov 2014 in Waterloo, Ontario, Canada. Palmer ran in the Para
ASI’s Sandra Hubbard-LeBlanc receives the Katharine Pearson award ‘shining example’ of caregiver
Sandra Hubbard-LeBlanc, mother of Cheryl, member of Alström Syndrome International Board, and chair of ASI’s Canadian branch, received the Katharine Pearson Shining Example Award for promoting
Today is National White Cane Day!
Let’s take a moment to admire all of the adults and adolescents with Alstrom Syndrome who are experts in white cane and other adaptive skills! Let’s
2016 – Eighth Alstrom Syndrome International Conference
ASI Conference – Plymouth Massachusetts May 13-16, 2016 ASI is already well into plans and planning for the 8th International Family Conference that will be
ASsociazione Sindrome di Alstrom Italia (ASSAI)
ASsociazione Sindrome di Alström Italia (ASSAI) ASSAI Officially Organized! First meeting of ASSAI Learn more about ASsociazione Sindrome di Alström Italia
International Rare Disease Day 2014
Today is International Rare Disease Day! Spread the word, raise awareness for Alström Syndrome. Wishing you all a productive day for our cause!! Rare Disease
ASI Awarded PCORI (Patient-Centered Outcomes Research) Contract
Hello Everyone!It’s always nice to be able to send along really good news. Yesterday, the Genetic Alliance and ten rare disorder partners were awarded a
Associazione Alström Syndrome Italia – Third Family Meeting
Associazione Alstrom Syndrome Italia will hold its third family meeting October 5, 2013 at the Hotel Terme Millepini – Montegrotto Terme, Padova PROGRAM Convenzione Eolo
2014 Master Golf Tournament Raffle!
Full details on the Alström Angels website: http://www.alstromangels.com/2014-masters-tickets.html
Alström Angels Golf Classic
Friday October 18, Lubboc Texas! For full information, visit the Alström Angels site! http://www.alstromangels.com/golf-classic.html
