News & Articles
Fish on!
It’s that time again! Our very own Gina Denbow has once again planned out a very exciting opportunity for folks here in Downeast Maine with
Mother’s Day Celebration Feast
What a wonderful coincidence that our 7th Annual International Conference and Scientific Symposium falls on Mother’s Day weekend! ASI planned a fantastic tribute to all
A Team Luncheon
The private room at East Bay Grille was a perfect fit for our group, and the staff was wonderfully accommodating. A nice taste of New
Ask the A Team
Always a high point of the conference, the “ask the A team” session is underway now— a chance for candid conversation between adults with Alström
Photos from Boston trip
We just couldn’t wait to get some pictures up from yesterday’s Duck Boat tour!
ASI Day two: Parents go to class, kids go to Boston!
Day Two of the conference is well underway, and we are delighted with the program that has been put together— informative sessions for parents and
Families from around the world
We have families from 16 countries attending our 7th Annual conference, including this nice group from Turkey chatting with Nevin Bengur here in the lobby.
ASI is on-site and ready to go
Families are starting to roll in to the 7th Annual Alström Syndrome International Family & Medical Conference— old friends have started getting reaquainted and new
It’s finally time!!!
We are extremely excited that the 7th Alstrom Syndrome Family and Medical Conference is starting up on May 9th!, just a few short days away!
Lubbock family copes with rare genetic disease
By Ellysa Gonzalez 4-year-old Lubbock girl lives with Alstrom Syndrome Five-and-a-half months after her daughter Bryce was born, Cassie Johnston began noticing a strange pattern
