News & Articles
International Rare Disease Day 2014
Today is International Rare Disease Day! Spread the word, raise awareness for Alström Syndrome. Wishing you all a productive day for our cause!! Rare Disease
ASI Awarded PCORI (Patient-Centered Outcomes Research) Contract
Hello Everyone!It’s always nice to be able to send along really good news. Yesterday, the Genetic Alliance and ten rare disorder partners were awarded a
Associazione Alström Syndrome Italia – Third Family Meeting
Associazione Alstrom Syndrome Italia will hold its third family meeting October 5, 2013 at the Hotel Terme Millepini – Montegrotto Terme, Padova PROGRAM Convenzione Eolo
2014 Master Golf Tournament Raffle!
Full details on the Alström Angels website: http://www.alstromangels.com/2014-masters-tickets.html
Alström Angels Golf Classic
Friday October 18, Lubboc Texas! For full information, visit the Alström Angels site! http://www.alstromangels.com/golf-classic.html
Fish on!
It’s that time again! Our very own Gina Denbow has once again planned out a very exciting opportunity for folks here in Downeast Maine with
Mother’s Day Celebration Feast
What a wonderful coincidence that our 7th Annual International Conference and Scientific Symposium falls on Mother’s Day weekend! ASI planned a fantastic tribute to all
A Team Luncheon
The private room at East Bay Grille was a perfect fit for our group, and the staff was wonderfully accommodating. A nice taste of New
Ask the A Team
Always a high point of the conference, the “ask the A team” session is underway now— a chance for candid conversation between adults with Alström
Photos from Boston trip
We just couldn’t wait to get some pictures up from yesterday’s Duck Boat tour!