About Mike Kirby

Mike is a volunteer for ASI who deals mostly with Internet stuffs. He loves to support the artistic efforts of the Alström community, and is known to bid up items at ASI silent auctions.

ASI Day two: Parents go to class, kids go to Boston!



Day Two of the conference is well underway, and we are delighted with the program that has been put together— informative sessions for parents and professionals, and fun activities for Alström children and adults alike.

By 8:45am we had a lobby full of folks ready to get on the chartered buses to Boston, and after a few hiccups with loading, the gang departed Plymouth for a Boston tour on the “Duck Boats”— authentic World-War-2 amphibious vehicles, refitted as tour buses for the Boston area.

From there, the group has headed to the Hard Rock Cafe… lunch for 150! As of this writing, the tour should be hitting the Science and Technology Museum, where staff there have put together a great program that should be of interest both to sighted and blind alike.

Meanwhile, the parents, caregivers and professionals have been stuck indoors on this sunny New England day, for some very worthwhile sessions to learn insights around hearing, cardiovascular and respiratory issues. Throw in some social networking and experience sharing, and we’re hard-pressed to figure out which group got the better schedule for today.

Families from around the world



We have families from 16 countries attending our 7th Annual conference, including this nice group from Turkey chatting with Nevin Bengur here in the lobby.

The conference has a full plate of activites on the schedule for family members of all ages— day trips to Boston for sightseeing and Plimoth Plantation for an authentic 16th century pilgrim experience, family-friendly movies in the auditorium, the indoor pool for (adult-supervised) aquatic fun, and of course Chelsea’s Special Olympics for children under 12 (including the tots!)

More to come as the conference continues!

ASI is on-site and ready to go



Families are starting to roll in to the 7th Annual Alström Syndrome International Family & Medical Conference— old friends have started getting reaquainted and new families are brightening the day (even the rainy parts)!

Volunteers like me will be updating the blog and striving to keep everyone informed of the conference as it goes on. Here are some tips for staying up to date:

• At the ASI registration desk, please take a moment to mark your home on our US or Worldwide maps… in that corner you will also find the day’s schedule posted on the big screen TV

• For the families staying here at the Radisson, check the in-room television channel 34 for reminders of activities and announcements of last-minute schedule changes

More to come!