To All ASI Families and Friends

You’ve probably been wondering why you’ve not received an ASI newsletter lately, not since the spring 2011 issue. You may be wondering if the ASI newsletters will still be published. Well, the Foor family hasn’t quit our publishing commitment with ASI for the newsletters, we’ve just been extremely busy and the summer months have just flown right by us. In addition, we didn’t receive hardly any news, especially from families, to be published in a summer newsletter this year. As many of you may know the Foors have been transitioning moving from Ohio, USA to our new home now in Kentucky; finally getting settled into our new location. With that being said, we along with the ASI “experts” have decided to combine the summer and fall issues of the ASI newsletter for this year. WE NEED ALL YOUR HELP! We are STRONGLY ENCOURAGING ALL FAMILIES to contribute your stories/articles/pictures/etc… You can e-mail Helen at: and you can e-mail Brittany at: (please note Brittany’s email change). We want to hear how things are going with all affected by AS. Your ASI family wants to know your latest successes/accomplishments/achievements or even your happening in battling AS your struggles/challenges as this is our way of connection between ASI conferences. THE DEADLINE FOR SUBMISSIONS IS OCTOBER 8, 2011. For those who had submitted news/pictures for the summer newsletter, we still have those and will certainly include those in as well; however, feel free to send updates on news/pictures if you so desire to do so. We hope to see you all featured in this upcoming newsletter! Hope this finds everyone doing well.

Best Wishes!
Helen Foor, Editor
Brittany Foor, Editor-In-Chief
Kentucky, USA

British Marque Car Club Fund Raiser in Northport, ME

August 26 – 28 witnessed the 9th British Marque Car Club Rally in Northport, ME and ASI was chosen as the designated charity! A successful event by anyone’s standards, members of ASI were privileged to be invited to the opening night banquet, and Katelyn Denbow spoke to a captivated crowd about ASI and Alström Syndrome. Thanks to the British Marque Car Club for their wonderful contributions to ASI!

Katelyn Denbow and Marty going for a spin in a classic MG!

Katelyn Denbow and Marty going for a spin in a classic MG!

Katelyn wowing the crowd at the British marque Car Club Rally!

Katelyn wowing the crowd at the British marque Car Club Rally!

Katelyn and Robin chatting before dinner.

Katelyn and Robin chatting before dinner.

1st Annual Angling for Alström a Wonderful Success!

Taking off the morning of the 1st Angling for Alstrom!

Taking off the morning of the 1st Angling for Alstrom!

If someone had told me 6 months ago how much work was involved in planning a fundraiser like the 1st Annual Angling for Alström, I’m not sure I would have stuck with the plan and made it to July 3.  But WOW, I’m sure glad I did!

The day began at 7am with the sun glistening on the water and 26 bass boats lining the shore of our cottage on Grand Falls Flowage.  Registration took place on our front lawn and soon everyone was raring to go.  Katelyn began the bass fishing tournament by announcing the order of the boats while sitting in the middle of the lake on her grandfather’s pontoon boat.  What a great start to a great day!

Once the tournament was underway, tables were set up, silent auction items were carefully placed and volunteers manned their posts as the day’s events began.  Children registered for Kate’s Kids Angle for Alström, a fishing tournament for children under 16 and received an Angling for Alström tee-shirt designed by Adam Encrapera’s uncle, Rick Mullaney. Three pontoon boats were available for the children to ride to see who could catch the biggest or most fish.  Trophies and medals were awarded for various fish caught, including the smallest fish.

Throughout the day tickets were bought on several raffle items and bids were placed on silent auction items, all donated by local businesses, family and friends.  A bake sale table housed many types of cookies, breads, rolls and cakes, which too was donated by family and friends.  The kids had their faces painted, and a few adults as well, there were games to play and lots of people just relaxed by the water.  Everyone seemed to be enjoying themselves.

By mid-afternoon, the bass fishing tournament came to an end and the boats lined the shore of our camp once again.  Each team arrived at the weigh station with bags of live bass waiting to be weighed.  The total for each team was written on a score board for all to see and the atmosphere was pure excitement as everyone awaited to see who the winners would be.  Cash prizes were awarded to the top 4 teams, as well as to the team with the largest fish.

The day ended with everyone enjoying lots of food at the lakeside cookout.  There were burgers, hot dogs, several different salads, corn on the cob, and lobsters, steamed to perfection on site.  Dessert was a huge Angling for Alström cake.  I don’t think anyone went away hungry and the site was awesome.  I took this opportunity to thank everyone for their support and hard work, and looking at the crowd gathered around the tables enjoying themselves was a bit overwhelming.  I couldn’t be happier with the love and support I felt at that moment.

Organizing the 1st Annual Angling for Alström was a lot of hard work and long hours.  I had lots of help from family and friends, including ASI’s own Phyllis, Tony, and Mike (and not to forget Jon, a new friend of the ASI family).  Their help and support was much appreciated and I don’t know what I would have done without them.

The day’s events raised over $3600…WOW!  Next year’s Angling for Alström is already in the works.  I learned a lot from this experience and can’t wait until next year.  The 2nd Annual Angling for Alström will be bigger and better and I hope to see some of you there.

Gina Denbow

Denbow Family Organizes Fishing Tournament by Gina Denbow

Angling for Alstrom Logo

Maine Blade Runners 1st Annual ASI Benefit Tournament

Fundraising…a scary adventure and A LOT of work, but worth it in the end if someone can benefit.

About 5 years ago I had a vision of organizing a bass fishing tournament to benefit ASI. I mentioned it to my husband, since he is a member of a bass club in Maine, but that was as far as it went. A few months ago I started talking about it again. This time after the talk, I jumped in and contacted the president of the club. After several emails we agreed to meet face to face to discuss details and are now on the road to the “1st Annual Angling for Alström” bass fishing tournament to benefit ASI.

I had no idea how much work was involved in organizing an event of this nature. I have spent weeks writing letters for donations and letters of invitation to participate in the tournament. I have made lists upon lists of businesses, companies, organizations, big and small, that I want to be sure to contact. I am begging and pleading with friends and family to cook, sponsor and volunteer on the day of the event. It’s a lot of work, I won’t lie, but I keep thinking of the end product and that is my drive. If I can help ASI in any way, then that is my mission. ASI is like my family and I would never dream of telling my brother that I couldn’t help him, so how can I not help my AS family?

The Angling for Alström tournament is scheduled for July 3. My vision includes the main tournament that will consist of a 2 person team/boat. Each team will pay a $125 registration fee that will include their registration, launch fee, 5 free raffle tickets and a BBQ dinner at the end of the day. The tournament will pay out 80% to the winning team and 20% of each fee will go directly to ASI. (Hopefully the winners will find it in their hearts to donate back to the cause.) Throughout the day, there will be games and activities for children, and a separate fishing derby, “Katelyn’s Angling for Alström”, for any child that would like to experience fishing. My dad and a family friend have agreed to captain their party boats throughout the day taking children out for an hour of fishing. Others have volunteered to weigh and measure the fish as they are caught so the children can record their daily catches. I have been contacting locals to sponsor this particular event so each child will receive a t-shirt with the tournament logo and a prize for their catch. Katelyn is very excited about this part of the fundraiser, as this is her baby, she had the idea and her father just helped her fine tune it.

I have been contacting larger businesses for donations for a silent auction and items to sell tickets on prior to the event. I also have contacted a media crew in hopes to have the event covered or at least a story in the paper. Awareness is half the battle when fund raising for something that so few know anything about.

As you can see, my husband and I, along with the Maine Blade Runners bass club are very busy, but it will all be worth it when we present a cheque to Alström Syndrome International. I challenge you to organize an event. Remember, “Drop by drop, we form a lake”.

Gina, Jeff, Katelyn and Cody Denbow

Full Schedule (Adobe Acrobat PDF)

(Full details on the Tournament can be found at