https://www.alstrom.org/team daily 0.75 2026-01-26 https://www.alstrom.org/team/rocky-tucker monthly 0.5 2025-11-18 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/7bf15a23-f2b2-4821-ad8f-31277ca80f22/202528-29_RAONetworkAnnualMeeting_lasvegas_sm-2.jpg Team - Rocky Tucker - Make it stand out Rocky Tucker, Executive Director https://www.alstrom.org/team/chase-palmer monthly 0.5 2025-11-19 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/d9b47084-c863-4dbc-bf79-f1872e92b2fa/1646879437706.jpeg Team - Chase Palmer - Make it stand out Chase Palmer, Science Director of ASI https://www.alstrom.org/team/gina-denbow monthly 0.5 2025-11-18 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/3082cee8-f894-4278-8284-345f3e8d48d0/IMG_0752.jpg Team - Gina Denbow - Make it stand out Gina Denbow, Family Support Director https://www.alstrom.org/team/robin-marshall monthly 0.5 2026-01-22 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/126ebe27-6c36-4d3d-a3c2-e8fbd3876c30/IMG_4985.png Team - Robin Marshall - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/team/katelyn-wo monthly 0.5 2026-01-26 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1769109157878-6NHP7NHNV60B956ODR1V/IMG_7024_Original.jpg Team - Katelyn Wo - Make it stand out Katelyn Wo, Science Associate https://www.alstrom.org/team/tiffany-felgar monthly 0.5 2025-11-18 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/c72b42db-365d-4c95-8e84-9f27030b4c94/tempImagerF1EGW.jpg Team - Tiffany Felgar - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/team/category/Board monthly 0.5 https://www.alstrom.org/team/category/Staff monthly 0.5 https://www.alstrom.org/team/tag/She%2FHer monthly 0.5 https://www.alstrom.org/team/tag/He%2FHim monthly 0.5 https://www.alstrom.org/team/tag/They%2FThem monthly 0.5 https://www.alstrom.org/story daily 0.75 2026-01-26 https://www.alstrom.org/story/giovani-florida monthly 0.5 2026-01-26 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1762441957644-4PW5IVS80HZZTKOCQ61O/Giovani+-+ASI+Warrior.png Story - Giovani - Florida - Make it stand out Giovanni at the Braille Challenge in Florida. https://www.alstrom.org/story/firstname-lastname-gykxf-xrpnm monthly 0.5 2026-01-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1762441912673-LCX90OSI3KQA47D8W0XN/Tyrson+-+ASI+Warrior.png Story - Tyrson - Pennsylvania - Make it stand out Tyrson enjoying the swing at the park. https://www.alstrom.org/story/tristsan-asi-warrior monthly 0.5 2026-01-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/df073f11-43ab-417a-81a2-9da5d0216601/Tristan+-+ASI+Warrior.png Story - Tristan - North Dakota - Make it stand out Tristan doing a roundhouse kick. https://www.alstrom.org/latest daily 0.75 2026-01-30 https://www.alstrom.org/latest/researchscienceupdate monthly 0.5 2026-01-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/aa2f47c0-0c92-40bd-8f96-cce3bab59616/596021218_122283352802203940_6191074770934597383_n.jpg Latest - Research & Science Update - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/latest/blog-2025-fund-drive monthly 0.5 2026-01-30 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/23c2a1ed-9742-4e01-81d6-f3126423e9dc/ASI+Letterhead.PNG Latest - The Annual ASI Fund Drive is Officially Underway! - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/latest/blog-newsletter-march2025 monthly 0.5 2025-11-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763604207630-TX2LDEQF12QQOXO412OZ/ASI+Newsletter%2C+March+2025+PG+1.png Latest - ASI Spring Newsletter https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763604210863-XMQNYQ0YDD2EWGPPR2ZH/ASI+Newsletter%2C+March+2025+PG+2.png Latest - ASI Spring Newsletter https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763604223440-BZQTQ24PYNHE1ADC78K4/ASI+Newsletter%2C+March+2025+PG+3.png Latest - ASI Spring Newsletter https://www.alstrom.org/latest/category/In+the+News monthly 0.5 https://www.alstrom.org/latest/category/Event monthly 0.5 https://www.alstrom.org/latest/category/Press+Release monthly 0.5 https://www.alstrom.org/latest/tag/The+SF+Chronicle monthly 0.5 https://www.alstrom.org/resource-alt daily 0.75 2025-10-30 https://www.alstrom.org/resource-alt/blog-post-title-one-fckg2-t8lhj-7fnhe-jygzg-9tcaf-syb9d monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-one-fckg2-t8lhj-7fnhe-jygzg-yrftt monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-one-fckg2-t8lhj-7fnhe-npl5a monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-one-fckg2-t8lhj-zre8g monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-one-fckg2-npw6a monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-two-b5pmz-y7mrl monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-three-8knft-mzk8g monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/blog-post-title-four-dxrj2-ykn55 monthly 0.5 2025-05-22 https://www.alstrom.org/resource-alt/category/Therapies monthly 0.5 https://www.alstrom.org/resource-alt/category/About+the+Disease monthly 0.5 https://www.alstrom.org/resource-alt/category/Lifestyle monthly 0.5 https://www.alstrom.org/resources-1 daily 0.75 2026-02-22 https://www.alstrom.org/resources-1/monitoring-guidelines monthly 0.5 2026-01-26 https://www.alstrom.org/resources-1/visually-impaired monthly 0.5 2025-11-13 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/6b9ce784-439d-45da-b0da-6852ff171839/4M7A0134.jpg Resources - Jamie’s Resource List for the Visually Impaired - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/resources-1/asi-handbook monthly 0.5 2025-11-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763050717163-XSZQRSMI8EWHNNUP4KE0/unsplash-image-g3O5ZtRk2E4.jpg Resources - ASI Handbook - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/resources-1/hospital-warning monthly 0.5 2026-01-30 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763051848999-JY1J80WLJPQKJ2OU9QUL/unsplash-image-GwgFPDXiSIs.jpg Resources - Important: Hospital & Outpatient Information - Make it stand out Vital information for any Alström patient to remember! https://www.alstrom.org/resources-1/category/Blind monthly 0.5 https://www.alstrom.org/resources-1/category/Resource monthly 0.5 https://www.alstrom.org/resources-1/category/Hospital+Suport monthly 0.5 https://www.alstrom.org/resources-1/category/Handbook monthly 0.5 https://www.alstrom.org/resources-1/category/Visually+Impaired monthly 0.5 https://www.alstrom.org/resources-1/category/Symptoms monthly 0.5 https://www.alstrom.org/resources-1/tag/resource monthly 0.5 https://www.alstrom.org/resources-1/tag/Hospital+Support monthly 0.5 https://www.alstrom.org/resources-1/tag/Resource monthly 0.5 https://www.alstrom.org/resources-1/tag/Hypoxia monthly 0.5 https://www.alstrom.org/resources-1/tag/Hospital monthly 0.5 https://www.alstrom.org/resources-1/tag/Information monthly 0.5 https://www.alstrom.org/resources-1/tag/Handbook monthly 0.5 https://www.alstrom.org/resources-1/tag/Visually+Impaired monthly 0.5 https://www.alstrom.org/research daily 0.75 2026-01-26 https://www.alstrom.org/research/mouse-models monthly 0.5 2026-01-26 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763046384929-NNIG87R5HVYPHTTJRB83/Mouse+ASI.png Research - Mouse Models for Alström - Make it stand out Fat Aussie Mouse used in Alström Research. https://www.alstrom.org/research/blog-post-title-two-mw75t monthly 0.5 2025-11-13 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1763046942608-I8T6T2WVVGULP7004UMH/unsplash-image-7IIPNV8E09E.jpg Research - Gene Mechanisms - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/research/category/Genes monthly 0.5 https://www.alstrom.org/research/category/Gene+Mechanisms monthly 0.5 https://www.alstrom.org/research/category/Research monthly 0.5 https://www.alstrom.org/research/tag/Mouse monthly 0.5 https://www.alstrom.org/research/tag/Genes monthly 0.5 https://www.alstrom.org/research/tag/Research monthly 0.5 https://www.alstrom.org/events daily 0.75 2026-03-02 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/d3276a0b-742a-4c7a-a21f-422195fc3c0a/IMG_2082.JPG https://www.alstrom.org/events/event-clinic-indy monthly 0.5 2026-01-22 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1769043485784-8CYIKC5GBLNEJ6Z2SSI1/Riley-Hospital-Indy.jpg Events - Adult Clinic in Indianapolis, IN - We are excited to return to Riley Hospital at Indiana University. Details for this clinic are underway. Please reach out for more information. https://www.alstrom.org/events/event-clinic-rochester monthly 0.5 2026-02-22 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1130c4f1-bb82-4b8f-8840-a8e6943e57bc/GOLISANO20BUILDING20NIGHT_1560877746229-1.jpg_92784296_ver1.0-1.jpg.webp Events - Pediatric Clinic in Rochester, NY - We are so excited to partner with Golisano Children’s Hospital. Details for this clinic are underway. Please reach out for more information. https://www.alstrom.org/events/bootsandbbq monthly 0.5 2026-03-02 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1d4e9ee6-7f88-4a58-9ecf-bd6bfaf1bb5c/ASI+Boots+%26+BBQ+Invitation%2C+Feb+2026 Events - Boots & BBQ For a Cure - Join us for ASI’s 3rd Annual fundraiser dinner and silent auction on Rare Disease Day this Feb. 28, 2026. Enjoy an evening of food, live music, great company and giving back—all to support individuals and families living with Alström Syndrome. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/7db6f01b-2e1a-42ad-8eec-8f5f9597b0f6/Live+Music+from+Jesse+Jennings Events - Boots & BBQ For a Cure - Get ready to kick up your boots, hit the dance floor, and sing along as we enjoy a night of live music, great energy, and unforgettable fun! Fort Worth’s very own, Jesse Jennings, will be live! https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770849732106-PGH8N83Q671AJ2JIV930/Screenshot+2026-02-11+at+4.41.50%E2%80%AFPM.png Events - Boots & BBQ For a Cure - Lost Oak Winery Your Neighborhood Winery: Burleson, Boerne, & Fredericksburg https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770687010245-4WWNR703WOYSSJQ4BE9N/New%2521%2BASI%2BGraphics%2B%25286%2529.png Events - Boots & BBQ For a Cure - Hickory Stick BBQ You’ve Tried the Rest. . .Now Try the Best! Voted Best Bar-B-Q in Fort Worth https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770687885367-UA2FNNL8FKBTHDDVY4PC/e-6+sportswear.png Events - Boots & BBQ For a Cure - E6 Sportswear Put one over your head! https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770686099702-B6WXRFB1ABFB2A79I5YN/New%2521%2BASI%2BGraphics%2B%25285%2529.png Events - Boots & BBQ For a Cure - Alley Cats Burleson Indoor. Outdoor. Fun! https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770685664583-SZYX5HSMUYAXGNHT04MC/IMG_2766.JPG Events - Boots & BBQ For a Cure - Cidercade Fort Worth The Best Thing to do in Fort Worth! https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770849727259-YE8TX3AFJ7C2MFHBU7H9/Screenshot+2026-02-11+at+4.41.28%E2%80%AFPM.png Events - Boots & BBQ For a Cure - Lone Star Orthopaedic and Spine Specialists https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1772070935439-ASECJLRIXEDJXEZ1D47M/The+Green+Team+Logo.png Events - Boots & BBQ For a Cure https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770685844244-OTGVANDU8Y6R5H2FMPOT/Body+Bar.jpg Events - Boots & BBQ For a Cure - Bodybar Pilates - Burleson Welcome to your favorite workout HAPPY HOUR! https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1772424362947-7XCNBLGRLQVSHADRG3WK/23705D14-A5F8-4292-8D36-26B723B5FFA8.png Events - Boots & BBQ For a Cure https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/382d2dc2-6e99-4a1a-a476-1dad04505ae3/Silent+Auction+Donors Events - Boots & BBQ For a Cure - Make it stand out Whatever it is, the way you tell your story online can make all the difference. https://www.alstrom.org/events/conference2026 monthly 0.5 2026-03-02 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1769018778662-PMUWO75WLA71BMRTQK1W/2026+ASI+Conference+Postcard+-+FRONT+FINAL.jpg Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Pack your boots—our 11th Alström Syndrome International Family Conference & Scientific Symposium is headed to Fort Worth, TX in May 2026! Join us for meaningful moments, inspiring conversations, and time with our Alström community from around the world. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1769019258483-3X16C8VE7ABWD0SR2RAS/unsplash-image-0YjYjjPn3os.jpg Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Register for the Conference! Deadline to secure your spot is upcoming on April 29, 2026. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/3f87aa89-9ff0-4c68-93c7-d75d343bbdf2/Sheraton_Front_View Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - We’re excited to share our host with you! Please book your hotels by April 29, 2026. Sheraton Downtown Fort Worth Hotel 1701 Commerce Street Fort Worth, TX 76102 : . . https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/a76ba088-2128-4784-92ef-9aeb6eaa15af/dallas-airport.jpg Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Visit DFW Airport to book your flights., the preferred airport into the DFW metroplex with more flights and convenient ground transportation options. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/5ee5d56f-f10a-4d15-babc-11f720df808f/Dallas+Love+Field Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Check out flights into Dallas Love Field Airport, primarily served by Southwest Airlines. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/d40a1be9-5a46-4168-9f03-0ecc8537ead7/TRE_Train Events - 11th Alström Syndrome International Family Conference & Scientific Symposium Skip the ride share and take the Trinity Railway Express to and from DFW Airport and Downtown Fort Worth. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/da9b1005-e1ef-45fc-84b2-a1b6401c5891/things-to-do-in-dallas-with-a-dart-pass-1-converted-2.jpg Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Use DART’s Love Link bus + rail to leave Dallas Love Field, get into Dallas and transfer to other services or ride shares. https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/1770684251085-Y38HOKX17ZZMYBT4YO2F/C%26C+Florist+LOGO.PNG Events - 11th Alström Syndrome International Family Conference & Scientific Symposium - Sponsor Hotel: Sheraton Downtown Fort Worth https://www.alstrom.org/for-families daily 0.75 2025-11-20 https://images.squarespace-cdn.com/content/v1/6903926f66c5432bd6c4cfd0/9f23860f-a30f-46b9-98a7-e0fb9465111f/IMG_0234.jpg For Families 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