1st Annual Gala & Silent Auction in Good Will-Hinckley, ME
Our 1st Annual Gala & Silent Auction was Saturday, March 23rd in Good Will-Hinckley, ME. Thanks to everyone’s generosity we were able to raise over $14,000 for Alström Syndrome! The day of the Gala it snowed about 22 inches. We still had a great turnout at our Gala even with the weather. We greatly appreciate […]
FDA’s Rare Disease Day
This year’s event on March 1, 2024 will explore ways to engage and collaborate with patients and advocates to support the development of medical products for rare diseases and address challenges with rare disease research. We have a packed agenda to empower patients with helpful information about clinical trials and engage local health care professionals […]
Giving Tuesday
Support Alström Syndrome International this Giving Tuesday! Let’s spread awareness and contribute to a brighter future for those affected by AS! Every donation, no matter how big or small helps those in need! #GivingTuesday #AlströmSyndrome #CharityImpact
Jamie Seeger Plays Bohemian Rhapsody by Freddie Mercury
Enjoy Jamie Seeger’s great performance of one of the world’s greatest melodies ever written, Bohemian Rhapsody. Jamie’s piano instructor states, “Jamie, who has been blind since she was 13, is my student. To play like that with no vision is a miracle in my mind. I hope you all will agree. Enjoy it! One can […]
Amanda inducted into National Honor Society
April, 2011. Amanda Fee has been recently inducted into the National Honor Society! Here is a photo of Amanda accepting her award at her High School in Minnesota. Congratulations Amanda!!
