Indianapolis June Adult Clinic

Our Indianapolis June Adult Clinic was this last weekend. The Alström A-Teamers saw doctors and providers at Indiana University’s School of Medicine in Indianapolis. We had a great time bonding, laughing, and getting to spend quality time with some of our Alström Family! As Chelsey Kostick, A-Teamer and ASI Board Member, responded when asked how […]

1st Annual Gala & Silent Auction in Good Will-Hinckley, ME

Our 1st Annual Gala & Silent Auction was Saturday, March 23rd in Good Will-Hinckley, ME. Thanks to everyone’s generosity we were able to raise over $14,000 for Alström Syndrome!  The day of the Gala it snowed about 22 inches. We still had a great turnout at our Gala even with the weather. We greatly appreciate […]

FDA’s Rare Disease Day

This year’s event on March 1, 2024 will explore ways to engage and collaborate with patients and advocates to support the development of medical products for rare diseases and address challenges with rare disease research. We have a packed agenda to empower patients with helpful information about clinical trials and engage local health care professionals […]

Giving Tuesday

Support Alström Syndrome International this Giving Tuesday! Let’s spread awareness and contribute to a brighter future for those affected by AS! Every donation, no matter how big or small helps those in need! #GivingTuesday #AlströmSyndrome #CharityImpact  

Jamie Seeger Plays Bohemian Rhapsody by Freddie Mercury

Enjoy Jamie Seeger’s great performance of one of the world’s greatest melodies ever written, Bohemian Rhapsody. Jamie’s piano instructor states, “Jamie, who has been blind since she was 13, is my student. To play like that with no vision is a miracle in my mind. I hope you all will agree. Enjoy it! One can […]

Amanda inducted into National Honor Society

April, 2011.  Amanda Fee has been recently inducted into the National Honor Society!  Here is a photo of Amanda accepting her award at her High School in Minnesota.  Congratulations Amanda!!

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