ASI Executive Director
Eric J. Beresford, PharmD
21030-G Frederick Road , #410,
Germantown, MD 20876 USA
ASI Scientific Advisory Board
Clair Francomano, MD
Harvey Institute for Human Genetics/GBMC
6701 N. Charles Street, Suite 2326
Towson, MD 21204 USA
Phone: 443-849-3131
clair.francomano@alstrom.org
ASI Family Outreach Coordinators
Gina Denbow
Shelly Marshall
Sarah Durfey
A-Team Outreach Coordinators
Shelly Marshall
Kim Wedel
Sibling Outreach Coordinators
Katie Marshall
IMPORTANT URGENT INFORMATION
For patients with Alström Syndrome admitted to the hospital or outpatient facilities, even if for routine minor surgery with anesthesia or sedation, it is vitally important that medical and nursing staff is aware that hypoxia (low blood oxygen levels) can occur very rapidly in patients with Alström Syndrome. In some patients, this has lead to life threatening heart/lung problems because of the reduced reserve capacity of the cardio respiratory system. Please inform your physician and medical team to use all precautions for monitoring oxygen saturation.
Jamie’s Resource List for the Visually Impaired (PDF)
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They are listed for informational purposes only.
