ASI Executive Director

Eric J. Beresford, PharmD
21030-G Frederick Road , #410,
Germantown, MD 20876 USA

ASI President

Chase Palmer, PharmD 
Chair of The Spanish Speaking Global Stakeholder Initiative

ASI Scientific Advisory Board

Clair Francomano, MD
Professor, Medical and Molecular Genetics
Indiana University School of Medicine 
975 W. Walnut Street, IB 130 
Indianapolis, IN 46202 USA

ASI Family Outreach Coordinators

Gina Denbow
Shelly Marshall
Sarah Durfey

A-Team Outreach Coordinators

Shelly Marshall
Kim Wedel

Sibling Outreach Coordinators

Katie Marshall


For patients with Alström Syndrome admitted to the hospital or outpatient facilities, even if for routine minor surgery with anesthesia or sedation,  it is vitally important that medical and nursing staff is aware that hypoxia (low blood oxygen levels) can occur very rapidly in patients with Alström Syndrome.   In some patients, this has lead to life threatening heart/lung problems because of the reduced reserve capacity of the cardio respiratory system.  Please inform your physician and medical team to use all precautions for monitoring oxygen saturation.

Jamie’s Resource List for the Visually Impaired (PDF)

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