ASI Family Outreach Coordinators
A-Team Outreach Coordinators
Sibling Outreach Coordinators
IMPORTANT URGENT INFORMATION
For patients with Alström Syndrome admitted to the hospital or outpatient facilities, even if for routine minor surgery with anesthesia or sedation, it is vitally important that medical and nursing staff is aware that hypoxia (low blood oxygen levels) can occur very rapidly in patients with Alström Syndrome. In some patients, this has lead to life threatening heart/lung problems because of the reduced reserve capacity of the cardio respiratory system. Please inform your physician and medical team to use all precautions for monitoring oxygen saturation.
Jamie’s Resource List for the Visually Impaired (PDF)
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