PFDD – Alstrom Syndrome International

Alström Syndrome International (EL-PFDD)

Voice of the Patient Report

The final video from the PFDD has been completed and is ready for viewing! The 13 minute highlight video can also be viewed here.

Onwards,

Chase Palmer

Alström Syndrome International

But remember that you are not alone. Many families will walk this road with you, and ASI is here to help.