Alström Syndrome Patient Registry and Phenotype Database

ASI holds the largest collection of essential  information about children and adults with Alström Syndrome, with data about more than 900 individuals. If you are treating a  patient with Alström Syndrome and wish to participate in this ongoing research effort, please contact:

Alström Syndrome International
14 Whitney Farm Road
Mount Desert, Maine 04660  USA

“It is difficult to say what is impossible, for the dreams of yesterday are the hopes of today and the reality of tomorrow.” ~Robert H. Goddard