Welcome to ASI

Giving Tuesday 2019 is here!

Giving Tuesday is here, and it’s a time we can all get behind ASI and help meet our fund-raising goals. Click on the image below to download to ASI today!

Thank you everyone for all that you do!

Giving Tuesday 2019

2019 Fundraising Season is Upon Us!

Please help support ASI today, by taking time to read this year’s fund drive letter. Every little bit counts towards research efforts and family support and always remember, “Drop by drop, a lake is formed!”

Damlaya damlaya göl olur.

Alström Syndrome is a rare hereditary genetic disorder first described by C.H. Alström in Sweden in 1959.  Alström Syndrome can affect people of all nationalities, ethnic groups, and races.  We currently have identified approximately 1053 individuals with Alström Syndrome in sixty four different countries and maintain an ongoing patient and genetic ALMS1 mutation database.

The Alström Syndrome Handbook is available.
Please contact the ASI Office to request a copy, or download a digital copy (PDF).

If you have just received a diagnosis of Alström Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alström Syndrome, please read this first: Information for New Families.

We also have made available a comprehensive list of resources to help families and patients: Resources for Families





Alström Research Connect and Family Exchange Launches!
Sign up today!!
ARC logoLook here for more information on ARC!

The information provided on this site is designed to support, not replace, the relationship that exists between a patient or site visitor and his or her physician.

Additional information about this site is available here.

Alstrom Syndrome International

Drop by drop we will form a lake…