Supporting those affected
by Alström Syndrome.

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The Alström Syndrome handbook

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About Alström Syndrome

Alström Syndrome is a rare hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. Alström Syndrome can affect people of all nationalities, ethnic groups, and races. We currently have identified approximately 1053 individuals with Alström Syndrome in sixty-four different countries and maintain an ongoing patient and genetic ALMS1 mutation database.

If you have just received a diagnosis of Alström Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alström Syndrome, please read this first: Information for New Families.

We also have made available a comprehensive list of resources to help families and patients: Resources for Families