Supporting those affected
by Alström Syndrome.

Welcome to Alström Syndrome International. We are a global nonprofit dedicated to supporting individuals and families affected by Alström Syndrome—a rare and complex genetic condition that can impact vision, hearing, heart function, metabolism, and more. In addition to providing community support, we are deeply committed to advancing research that brings us closer to better understanding, treatments, and ultimately a cure.

Our community is small but incredibly strong, and at the heart of it all is connection. At our events, we share a glass Damla—a single water drop—as a symbol of our belief that “Drop by Drop, We Make a Lake.” Together, through our stories, strength, hope, and science, we are making a difference.