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Alström Syndrome International
For Families
For Professionals
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Welcome to Alström Syndrome International
Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. It is estimated that Alstrom Syndrome affects fewer than 1 in 1,000,000 people. We currently have identified at least 800 individuals with Alström Syndrome in fifty two different countries and maintain an ongoing patient registry. Alström Syndrome can affect people of all nationalities, ethnic groups, and races. If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, please read this first.
Mission of Alström Syndrome International Alström Syndrome International is a 501 (c)3 Registered Charity. Alstrom Syndrome International is a member of and supports the work of |
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Last Modified: March 14, 2012 | |||||