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Supporting those affected by Alström Syndrome

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Welcome to Alström Syndrome International


The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, please read this first

Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959.  We currently have identified nearly 800 individuals with Alström Syndrome in fifty two different countries and maintain an ongoing patient registry.  Alström Syndrome can affect people of all nationalities, ethnic groups, and races.

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YOUR SUPPORT MAKES A DIFFERENCE..
Alström Syndrome International is a 501 (c)3 Registered Charity. 

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DON'T MISS THE NEW ASI FORUM  WHERE ALL TOPICS ALSTROM ARE DISCUSSED WITH FAMILIES, PHYSICIANS, AND RESEARCHERS!!
To sign up, please fill out the request form using the following LINK.


 
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Rare Disease Day 2012


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    Last Modified: January 22, 2012  

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