Welcome to Alström Syndrome International

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Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959.  It is estimated that Alstrom Syndrome affects fewer than 1 in 1,000,000 people.  We currently have identified at least 800 individuals with Alström Syndrome in fifty two different countries and maintain an ongoing patient registry.  Alström Syndrome can affect people of all nationalities, ethnic groups, and races.

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, please read this first. 

Drop by drop we will form a lake.. Damlaya damlaya göl olur!
YOUR SUPPORT MAKES A DIFFERENCE..

Mission of Alström Syndrome International
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome.

Alström Syndrome International is a 501 (c)3 Registered Charity. 

IF YOU WISH TO DISCUSS MAKING A DONATION TO SUPPORT ASI, PLEASE CONTACT OUR OFFICE [207]244 7043 OR ASIRobin@hotmail.com

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