Welcome to Alström Syndrome International

The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.

If you have just received a diagnosis of Alstrom Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alstrom Syndrome, please read this first. 

Alström Syndrome is a very rare, hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. Since then, there have been only 266 cases reported in the medical literature. We currently have identified more than 660 individuals with Alström Syndrome in forty seven different countries and maintain an ongoing patient registry.  Alström Syndrome can affect people of all nationalities, ethnic groups, and races.

 

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Alström Syndrome International is a
501 (c)3 Registered Charity. 

  

 

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