Alström Syndrome is a rare hereditary genetic disorder first described by C.H. Alström in Sweden in 1959. We currently have identified more than 800 individuals with Alström Syndrome in fifty four different countries and maintain an ongoing patient and genetic ALMS1 mutation registry. Alström Syndrome can affect people of all nationalities, ethnic groups, and races.
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If you have just received a diagnosis of Alström Syndrome for you or a member of your family, or if you are concerned that you or your child might have Alström Syndrome, please read this first: Information for New Families
The Alstrom Syndrome Handbook is now available.
Please contact the ASI Office to request a copy.
We also have made available a comprehensive list of resources to help families and patients: Resources for Families
The information provided on this site is designed to support, not replace, the relationship that exists between a patient or site visitor and his or her physician.
Last modified: July 8, 2012