Board of Directors and Family Outreach Coordinators

Mission
To provide support, information, and coordination world-wide to families and professionals in order to treat and cure Alström Syndrome

ASI Board of Directors 2015-2016

  • Phyllis Aschenbrenner (USA), Chair
  • Nevin Bengur (USA)
  • Catherine Carey, MD (UK)
  • Randy Douglas (Canada)
  • Selma Düzleni, MD, PhD (Turkey)
  • Brittany Foor (USA)
  • Clair Francomano (USA)
  • Sandra M. Hubbard-LeBlanc (Canada)
  • Pamela Jackson (USA)
  • Tony Jackson (USA)
  • Cassie Johnston (USA)
  • Pietro Maffei, MD, PhD (Italy)
  • Mary Smart (USA)

Robert P. Marshall (USA), Executive Director
Shannon Caldwell (USA) A Team Leader and Ambassador
Brittany and Helen Foor (USA) – Editors Panoramic Views

  • Family Outreach Coordinators
    Gina Denbow (Canada) – GinaRoxanne.Denbow@nbed.nb.ca
  • Carrol Lyon (UK) – carrol_lyon@hotmail.com
  • Aline Korol (Western Canada) – pkorol@sasktel.net
  • Lynn and Cassie Johnston (USA) – Sibling Support Coordinators
    johnstoncassie2@aol.com