Alström Syndrome in the News

Rhythm Pharmaceuticals Announces New Topline Clinical Data from Ongoing Phase 2 Basket Studies Evaluating Setmelanotide in Rare Genetic Disorders of Obesity Further Improvements Observed in Bardet-Biedl Syndrome Patients; Initial Proof-of-Concept Data in Alström Syndrome Demonstrates Significant Weight Loss and Decreased Hunger Rhythm Plans to Initiate Combined Pivotal Phase 3 Trial in Bardet-Biedl Syndrome and Alström Syndrome in […]

Update on the July 3 Memorial for Jan Marshall

Dear Friends and Neighbors, Many, but certainly not all, of you are aware that for 33 years I, with my wife Jan by my side, was the owner, manager, and producer of the Deck House Restaurant and Cabaret Theater, a largely summer seasonal enterprise, first in Bass Harbor and then in Southwest Harbor. That enterprise […]

July 3 Memorial for Jan Marshall – Full Details!

Dear Erica, Alstrom Family, Players and Friends, APOLOGIES!! I am sorry to have been largely MIA since last Fall. As most know, Jan passed away back in September. Several months prior to her death, we lost her father, our beloved “Umpy.” Not long after Jan’s passing, our dog, “Maggie,” also moved on. Several very dear […]

Memorial Concert for Jan Marshall, July 3, 2017!

Come one, come all, and join us at Camp Beech Cliff, Mount Dessert Island, ME on July 3! We’ll be having a memorial concert and benefit in memory of Jan Marshall, our beloved founder and “Mama” to so many. The 7:00 PM concert will be preceded by some hors d’oeuvres and a cash bar beginning […]

Save the Date!

Save the date! The 9th Alström Syndrome International Conference May 2-6, 2019 Galveston, TX, USA Venue: Hotel Galvez Details to come!  

Conference Videos Online!

Hi All, I just wanted to let everyone know that we’ve got some wonderful videos of the 2016 ASI International Conference that folks can check out on YouTube! We have a full index of all the videos for you to browse! Take a look!

Aspirin Social Innovation Award 2016!

Aspirin Social Innovation Award: Share & Vote Now Aspirin Social Innovation Award 2016! With this prestigious jury award the Bayer foundation honors every year the 5 most promising social impact innovators from health and food/nutrition related areas worldwide. The Genetic Alliance is one of our 25 nominees in 2016 for The Platform for Engaging Everyone Responsibly […]

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