News & Articles
Alström Syndrome International (ASI) Externally Led-Patient Focused Drug Development (EL-PFDD)
September 22, 2022 8:30am – 3:00pm Dear Alström Family, Voices of the People – The Alström Syndrome Journey Alström Syndrome International (ASI) Externally Led-Patient Focused
Inaugural Alstrom Syndrome Pediatric Multidisciplinary Clinic at Indiana University in Indianapolis
Background As many of you are probably aware, in 2015, ASI realized its long-held dream of establishing an Alstrom Syndrome Center of Excellence at Greater
Inaugural Alstrom Syndrome Pediatric Multidisciplinary Clinic at Indiana University in Indianapolis
Please note: this clinic will be for those 3 to 17 as of June 1. Background As many of you are probably aware, in 2015, ASI realized
Upcoming Alstrom Syndrome Multidisciplinary Clinic in September 2021
Upcoming Alstrom Syndrome Multidisciplinary Clinic at the Jan D. Marshall Center of Excellence for the Treatment of Alstrom Syndrome at Greater Baltimore Medical Center (GBMC).
Updates on Information, Opportunities, and an Important Save the Date
Dear Family, I deliberately used the word “denizens” above because the most common definition is “inhabitant.” However, one also finds “one admitted to residence in
Giving Tuesday is here!
Giving Tuesday is here, and it’s a time we can all get behind ASI and help meet our fund-raising goals. Click on the image below
2019 Fund Drive!
Dear Alström Family and Friends, For many years ASI has been “sailing to windward” against the wind and often against the cultural tides that decreed
Upcoming Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) March 5 – 8, 2020
PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 1 -17. Anyone is welcome! Information and consults will be in English. WE NEED TO HEAR FROM
Upcoming Alstrom Syndrome Multidisciplinary Clinic
To: Adult Patients (and their parents) with Alstrom Syndrome From: Robin Marshall, Executive Director, Alstrom Syndrome International Re: Upcoming Alstrom Syndrome Multidisciplinary Clinic at the
2019 Conference Attendee Feedback Needed!
Dear 2019 Conference Attendees, I’m writing again to encourage you to complete the attached Survey Monkey survey, regarding your experience in Galveston earlier this month.
