Upcoming Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) March 5 – 8, 2020
PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 1 -17. Anyone is welcome! Information and consults will be in English. WE NEED TO HEAR FROM YOU BY December 15, 2019! BACKGROUND: As many of you are probably aware, ASI realized the long-held dream of establishing an Alstrom Syndrome Center of Excellence, named for Jan D. […]
Upcoming Alstrom Syndrome Multidisciplinary Clinic
To: Adult Patients (and their parents) with Alstrom Syndrome From: Robin Marshall, Executive Director, Alstrom Syndrome International Re: Upcoming Alstrom Syndrome Multidisciplinary Clinic at the Jan D. Marshall Center of Excellence for the Treatment of Alstrom Syndrome at Greater Baltimore Medical Center (GBMC). Date: September 26 – 29, 2019 PLEASE NOTE: FOR THE FORESEEABLE FUTURE, […]
Updated Conference Information!!!
Hi All, We have updated our Galveston Conference information including silent auction details, tentative schedule, and transportation details! See all Conference Information
A Call to our Professional Colleagues!
We would like to extend a invitation to all of our professional colleagues to review the 2019 conference information and request your input! Please visit the page below for details! https://www.alstrom.org/a-call-to-our-professional-colleagues/
Don’t Miss Out on the Early Bird Special!!!
Don’t miss it! Pay Now: Early Bird Special! Register by January 31, 2019 and receive a 10% discount on registration costs! Register Now to enjoy the Early Bird savings!
Conference Registration Now Available!
Conference Registration Is Now Available Pay Now: Early Bird Special! Register by January 31, 2018 and receive a 10% discount on registration costs! Register Now to enjoy the Early Bird savings! Pay Later: You can also make registrations for paying later. The Early Bird Special does not apply to this registration method. Register Now to Pay […]
Reserve your room for the 2019 conference today!
Hotel Reservations Now Available! Folks can now reserve your hotel rooms at The Hotel Galvez. Please be sure to read all details before attempting to reserve your room!
Date Change on Baltimore Clinic! Now December 6 – 9, 2018
The Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC), has been rescheduled for December 6 – 9, 2018. If you have any questions, don’t hesitate to reach out to us.
Upcoming Alstrom Syndrome Multidisciplinary Clinic at Greater Baltimore Medical Center (GBMC) in September
PLEASE NOTE: THIS CLINIC WILL BE FOR THOSE 1 -12. Anyone is welcome! Information and consults will be in English. WE NEED TO HEAR FROM YOU BY July 20th! BACKGROUND: As many of you are probably aware, ASI has realized the long-held dream of establishing an Alstrom Syndrome Center of Excellence. In what we hope […]
Alström Syndrome in the News
Rhythm Pharmaceuticals Announces New Topline Clinical Data from Ongoing Phase 2 Basket Studies Evaluating Setmelanotide in Rare Genetic Disorders of Obesity Further Improvements Observed in Bardet-Biedl Syndrome Patients; Initial Proof-of-Concept Data in Alström Syndrome Demonstrates Significant Weight Loss and Decreased Hunger Rhythm Plans to Initiate Combined Pivotal Phase 3 Trial in Bardet-Biedl Syndrome and Alström Syndrome in […]
