Get yourself excited about the 2019 ASI Conference!
Come get excited about The 9th Alström Syndrome International Conference in Galveston, TX by checking out this amazing highlights video from the 2016 Conference in Plymouth, MA!
Update on the July 3 Memorial for Jan Marshall
Dear Friends and Neighbors, Many, but certainly not all, of you are aware that for 33 years I, with my wife Jan by my side, was the owner, manager, and producer of the Deck House Restaurant and Cabaret Theater, a largely summer seasonal enterprise, first in Bass Harbor and then in Southwest Harbor. That enterprise […]
July 3 Memorial for Jan Marshall – Full Details!
Dear Erica, Alstrom Family, Players and Friends, APOLOGIES!! I am sorry to have been largely MIA since last Fall. As most know, Jan passed away back in September. Several months prior to her death, we lost her father, our beloved “Umpy.” Not long after Jan’s passing, our dog, “Maggie,” also moved on. Several very dear […]
Memorial Concert for Jan Marshall, July 3, 2017!
Come one, come all, and join us at Camp Beech Cliff, Mount Dessert Island, ME on July 3! We’ll be having a memorial concert and benefit in memory of Jan Marshall, our beloved founder and “Mama” to so many. The 7:00 PM concert will be preceded by some hors d’oeuvres and a cash bar beginning […]
Save the Date!
Save the date! The 9th Alström Syndrome International Conference May 2-6, 2019 Galveston, TX, USA Venue: Hotel Galvez Details to come!
Conference Videos Online!
Hi All, I just wanted to let everyone know that we’ve got some wonderful videos of the 2016 ASI International Conference that folks can check out on YouTube! We have a full index of all the videos for you to browse! Take a look!
Aspirin Social Innovation Award 2016!
Aspirin Social Innovation Award: Share & Vote Now Aspirin Social Innovation Award 2016! With this prestigious jury award the Bayer foundation honors every year the 5 most promising social impact innovators from health and food/nutrition related areas worldwide. The Genetic Alliance is one of our 25 nominees in 2016 for The Platform for Engaging Everyone Responsibly […]
Jan’s Story (from the Bangor Daily News)
This is a reproduction of Jan’s Story, found on the Bangor Daily News. SOMESVILLE, ME – Jan Davis Marshall of Somesville, ME died on September 6, 2016 , leaving her wide network of family, friends and the genetics research community at Jackson Laboratory stunned by her passing. Her dynamic life began in western New York […]
Celebration of Life for Jan Marshall
Hello Friends, Earlier I had indicated that plans to celebrate Jan’s life would be postponed until after both the A-Team Retreat and the GBMC Clinic. However, in part because so many A-Teamers and a number of Alstrom parents will be here next weekend and because many of our Deck House friends are nearby, and certainly […]
From Robin Marshall to All ASI Families
Dear Friends, Thanks for the avalanche of mail and messages. I’m not so good at talking/speaking yet, so I’m writing. This morning my son-in law, Richie, and/or I lost it over the coffee maker, which Jan always sets up, and avocados, which Jan always makes into her special guac. Lily (now 7), our younger granddaughter, […]
