Welcome to the ASI Community. We’re here to help support you every step of the way.

What is Alström Syndrome?

We’re so glad you’re here to learn more! Alström Syndrome is a rare genetic disease that affects many parts of the body. Alström Syndrome is named for a Swedish doctor, Carl-Henry Alstrom, who first described it in 1959.

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Where to Go First

  • Three people smiling and posing for a photo inside a restaurant or cafe. The group includes an older woman with glasses, a young man with a white cap and headphones, and a man with glasses wearing a red shirt with a bowling pin pattern.

    For Families

    Visit our page just for families with Alström Syndrome. We have resources, support for parents, individuals, & siblings.

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  • Interior of a library with tall bookshelves filled with books and hanging light bulbs overhead.

    Resources

    Check out the resources page for more information on Alström Syndrome.

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  • Flyer for the 11th Annual Alström Syndrome International Family Medical Conference and Scientific Symposium in Fort Worth, Texas. Features a Texas-shaped outline with a longhorn steer wearing star-shaped sunglasses. Text invites people to join for BBQs, boots, and fun with the Alström family, including date and time details.

    The Latest News & Events with ASI

    Interested in attending our next Clinic & Stakeholder Meeting, Conference or event? Check here for dates!

    Visit
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    Reach Out to our Team

    Reach out to a member of our team for anything.

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  • Next Steps for an Alström Syndrome Diagnosis

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    Next Steps