Where Community Comes to Life
Events
Stay informed about upcoming fundraisers, educational conferences, clinics and other events that bring together families, clinicians, and researchers around the world to learn, share, and support one another.
About Alström Events
Connect. Learn. Unite.
Alström Syndrome events are more than dates on a calendar—they’re moments of togetherness, education, and hope. You’ll join families, researchers, advocates, and supporters as we strengthen our community and advance our mission.
During any Alström event, you’ll find belonging, encouragement, and inspiration. Come be part of a community that lifts each other up, shares knowledge, and works together toward brighter days.
View our Upcoming Events below and make plans to join us!
Boots & BBQ For a Cure
Join us for ASI’s 3rd Annual fundraiser dinner and silent auction on Rare Disease Day.
Pediatric Clinic in Rochester, NY
Join us this April for our upcoming Pediatric Clinic and Stakeholder Meeting in Rochester, NY.
11th Alström Syndrome International Family Conference & Scientific Symposium
Mark your calendars for the 11th Alström Syndrome International Family Medical Conference & Scientific Symposium upcoming this May 2026 in Fort Worth, Texas.
Adult Clinic in Indianapolis, IN
This Fall 2026, our Adult Clinic and Stakeholder Meeting will be held in Indianapolis, Indiana.