Privacy Policy.

Privacy Policy

Introduction

Alström Syndrome International (“ASI”, “us”, “we”, or “our”) operates the website www.alstrom.org (the “Service”).
This Privacy Policy explains how we collect, use, and safeguard your personal information when you use our Service.

By using our website, you agree to the practices described in this Privacy Policy.

Our Commitment to Your Privacy

We Respect Your Confidentiality

Your personal information is held in strict confidence. We use it only for its intended purpose and never sell or trade your information.

We Protect Your Information

If you email us, we may retain your message, our response, and your email address for customer service purposes.
We may follow up with additional communications from ASI.
You may opt out of email communications at any time.

We Keep Accurate Records

You may request a copy of your information, request corrections, or request removal from our databases (unless retention is required by law).

Contact information for these requests is provided at the end of this policy.

Information We Collect

1. Personal Data

We may ask you to provide certain personally identifiable information, including:

  • Name

  • Email address

  • Phone number

  • Mailing address

  • Cookies and usage data

2. Usage Data

We automatically collect data about how the Service is accessed, such as:

  • IP address

  • Browser type and version

  • Pages visited

  • Time and date of visit

  • Time spent on pages

  • Device identifiers

  • Diagnostic information

3. Cookies & Tracking Technologies

We use cookies, tags, and tracking scripts to improve and analyze our Service.

Types of Cookies Used:

  • Session Cookies – operate our Service

  • Preference Cookies – remember your settings

  • Security Cookies – improve protection and authentication

You can disable cookies in your browser settings, but some features may not function properly.

How We Use Your Information

ASI uses the collected data for purposes such as:

  • Operating and maintaining the website

  • Notifying you of Service updates

  • Enabling interactive features

  • Providing customer support

  • Improving site functionality and performance

  • Monitoring usage

  • Detecting and preventing technical issues

Data Transfers

Your data may be transferred to servers located outside your state or country.
If you are outside the United States and submit information, you acknowledge the transfer of your data to the U.S.

We take reasonable steps to ensure your data is treated securely and in accordance with this policy.

Disclosure of Data

We may disclose personal information only when necessary:

  • To comply with legal obligations

  • To protect ASI’s rights or property

  • To investigate potential wrongdoing

  • To protect user or public safety

  • To defend against legal liability

Security of Your Data

We use commercially reasonable measures to protect your personal information.
However, no method of online transmission or storage is completely secure.

Data Breach Protocol

If a data breach occurs, ASI will:

  • Investigate within 72 hours

  • Identify impacted individuals and data

  • Notify regulators and affected users

  • Implement containment and remediation measures

If notification cannot occur within 72 hours, ASI will provide justification for the delay.

Service Providers

We may employ third-party companies to:

  • Host the website

  • Provide analytics

  • Assist with Service-related functions

These providers may access Personal Data only as necessary to perform their tasks and are prohibited from using it for other purposes.

Analytics Tools We Use

We may utilize third-party analytics services, including:

Links to External Sites

Our website may contain links to other websites not operated by ASI.
We strongly encourage you to review the privacy policies of any external sites you visit.
ASI is not responsible for their content or practices.

Changes to This Policy

We may update this Privacy Policy periodically.
Updated versions will be posted on this page, and we will notify users by email or website notice as appropriate.

Your continued use of the Service constitutes acceptance of any changes.

Contact Us

If you have any questions or requests regarding this Privacy Policy, you may contact us using the form below:

Email: info@alstrom.org
Website: www.alstrom.org
Phone: 817-734-9721
Mail: Alström Syndrome International
251 SW Wilshire Blvd #124-304; Burleson, TX 76028