Find everything you need in one place: educational materials, research insights, support resources, and more to empower individuals, families, clinicians, and researchers.
Living with vision loss can bring unique challenges, but there are many tools and supports available to help. This resource list offers information on assistive technologies, educational materials, and community organizations that empower individuals with visual impairments to lead more independent and connected lives.
Knowledge is power. Download our comprehensive Alström Handbook to learn, understand, and navigate life with confidence. This resource is packed with expert information, guidance, expert insight, and tools for navigating life with confidence.
For patients with Alström Syndrome admitted to the hospital or outpatient facilities, even if for routine minor surgery with anesthesia or sedation, it is vitally important that medical and nursing staff is aware that hypoxia (low blood oxygen levels) can occur very rapidly in patients with Alström Syndrome.
