Where Community Comes to Life
Events
Stay informed about upcoming fundraisers, educational conferences, clinics and other events that bring together families, clinicians, and researchers around the world to learn, share, and support one another.
About Alström Events
Connect. Learn. Unite.
Alström Syndrome events are more than dates on a calendar—they’re moments of togetherness, education, and hope. You’ll join families, researchers, advocates, and supporters as we strengthen our community and advance our mission.
During any Alström event, you’ll find belonging, encouragement, and inspiration. Come be part of a community that lifts each other up, shares knowledge, and works together toward brighter days.
View our Upcoming Events below and make plans to join us!
Boots & BBQ For a Cure
Mark your calendars for ASI’s 4th Annual fundraiser dinner and silent auction upcoming February 20, 2027 at Lost Oak Winery in Burleson, Texas.
Boots & BBQ For a Cure
Dive into the details of ASI’s 3rd Annual fundraiser dinner and silent auction that took place in February 2026 on Rare Disease Day.