Where Community Comes to Life
Events
Stay informed about upcoming fundraisers, educational conferences, clinics and other events that bring together families, clinicians, and researchers around the world to learn, share, and support one another.
About Alström Events
Connect. Learn. Unite.
Alström Syndrome events are more than dates on a calendar—they’re moments of togetherness, education, and hope. You’ll join families, researchers, advocates, and supporters as we strengthen our community and advance our mission.
During any Alström event, you’ll find belonging, encouragement, and inspiration. Come be part of a community that lifts each other up, shares knowledge, and works together toward brighter days.
View our Upcoming Events below and make plans to join us!
Looking for a Past Event? Find details in the drop down below.
Past Events
Boots & BBQ For a Cure
Join us for ASI’s 3rd Annual fundraiser dinner and silent auction on Rare Disease Day.