News & Articles
A Call for Items for the ASI Silent Auction!
The 2013 International Conference in Plymouth, MA is fast approaching, and here’s your chance to help insure it’s a success. We’re looking for items for
Drop by Drop, Lubbock Family Makes a $30,000 Lake for Rare Disease
Lubbock family turns a devastating diagnosis into a West Texas-sized lake for research. LUBBOCK, Texas – Jan. 25, 2013 – What if your child was
Happy Holidays to All from Alström Syndrome International!
From all of us at Alström Syndrome International, we wish everyone the Happiest of Holidays and the best of luck into the New Year! The photo
ASI Family Conference
2013 AGENDA – INCLUSIVE -12-01-2012 Dear Families and Friends, The 7th International Family Conference is just “around the corner” (May 9-13)! Many of you have
BJ receives successful heart-lung transplant !!
Please check out this wonderful news about BJ receiving her heart-lung transplant! She asked that we share her story with the Alstrom Family and is
Two runners for ASI in the New York City Marathon
Greetings! I am very excited to report to you all that we have TWO runners in the upcoming New York City Marathon (Sunday November 4)
Jamie Seeger Plays Bohemian Rhapsody by Freddie Mercury
Enjoy Jamie Seeger’s great performance of one of the world’s greatest melodies ever written, Bohemian Rhapsody. Jamie’s piano instructor states, “Jamie, who has been blind
2nd Annual Angling for Alstrom is August 4th!
Gina Denbow has done it again. While being a full time mother and teacher, she has managed to pull together one of the highlights of
Skiing Facts – by Lauren (age 10)
Skiing Facts By Lauren – Age 10 Do you want to go skiing? First you need skis, boots, and a helmet. If you can’t see
Gabe Iacovino – persistence!
I would like to share a story about the success and determination of a child with Alstrom Syndrome in the hopes that not only that
